As part of our work to hear from people across the Yorkshire & Humber, we worked with local volunteer groups to host workshops in their communities. Have a closer look how we work with public and what we have learnt so far from our communities in our reports.
Stay in touch via our newsletter to learn about upcoming opportunities and help to shape healthcare research in the Yorkshire and Humber region.
Your voice matters: Take part in our survey on the use of data by the NHS and its partners
NHS South Yorkshire ICB, the University of Sheffield, and NHS Secure Data Environment conducting a survey to understand public perspectives on how their data is used by the NHS and its partner organisations.
Whether you have thoughts about how data is kept safe and secure, or how it is used to improve patient outcomes, we want to hear from you. The survey takes just a few minutes to complete, and your responses will remain anonymous.
What we have learnt from our communities so far
In these workshops, we learned that people wanted to know more about how data is accessed and used in research, and what we really mean when we talk about ‘your data’. Everyone in the workshops also wanted us to be honest and clear about the strong security measures we put in place to keep people’s data safe. All the workshops were led by volunteer groups, and they wrote the reports to make sure the conversations were accurate and truly reflected what their communities said.
There will be more opportunities for us to hear from you, this is your data and we want you to have a say in how it is used and accessed.
We invite you to subscribe to our newsletter of the Yorkshire and Humber Secure Data Environment (Y&H SDE). By joining our community, you’ll first to receive regular updates on:
