Application
Approval & Verification
Data Processing & Data Sharing
Completion
Application
Researchers interested in accessing Y&H SDE datasets can do so by completing and submitting the data application form.
Approval & Verification
After the researcher submits their form, the Yorkshire and Humber SDE team conducts a thorough review of the application to verify the researcher’s eligibility and its data request. There will be a public benefit evaluation of the project by examining what direct value it will provide to the communities.
Data Processing & Data Sharing
Once both the researcher and the project are approved and verified, the datasets are securely provided for the relevant research purposes. Before the data can be used, it undergoes de identification, ensuring that sensitive personal information is replaced with pseudonyms to safeguard individual privacy.
In case researchers have any questions or require clarification regarding provided datasets, the Y&H SDE encourages collaboration between researchers and data providers.
Completion
When the research project is completed, the data is removed from the SDE. Researchers are allowed to obtain an anonymous summary of the data analysis conducted within the SDE and include any findings or insights within the metadata of the used datasets.
Check how we keep the NHS data secure in Our Security Promise.
Application
Application
Researchers interested in accessing Y&H SDE datasets can do so by completing and submitting the data application form.
Approval & Verification
Approval & Verification
After the researcher submits their form, the Yorkshire and Humber SDE team conducts a thorough review of the application to verify the researcher’s eligibility and its data request. There will be a public benefit evaluation of the project by examining what direct value it will provide to the communities.
Data Processing & Data Sharing
Data Processing & Data Sharing
Once both the researcher and the project are approved and verified, the datasets are securely provided for the relevant research purposes. Before the data can be used, it undergoes de identification, ensuring that sensitive personal information is replaced with pseudonyms to safeguard individual privacy.
In case researchers have any questions or require clarification regarding provided datasets, the Y&H SDE encourages collaboration between researchers and data providers.
Completion
Completion
When the research project is completed, the data is removed from the SDE. Researchers are allowed to obtain an anonymous summary of the data analysis conducted within the SDE and include any findings or insights within the metadata of the used datasets.
Check how we keep the NHS data secure in Our Security Promise.
Keeping your data secure
We recognise that holding people’s healthcare records is a huge privilege. That’s why the SDE adheres to the highest standards to keep your data safe, transparent and secure:
- Only approved researchers working on approved projects can access and analyse fully de-identified data within the environment
- We use cutting-edge de-identification and pseudonymisation techniques to protect your privacy. It means the information will not include identifiers, so a person cannot be recognised. Identifiers include personal details such as your name, contact number, address, NHS number, etc.
- Access follows “least privilege” principles – researchers only see the minimum data needed for their approved project
You Control Your Data
You own your personal healthcare data. Sharing it can enrich high-quality research that helps others and can save lives. But you decide how it’s used:
- The Y&H SDE puts patient-centric approach first through keeping the local community informed about its activities, and regularly assessing public views on how data is used and stored
- Our “bottom-up” local governance ensures your GP practice and local data providers stay involved, shaping what data is shared and how.
- We will share our research findings with you and the local community through case studies, so you know exactly what’s happening inside the Y&H SDE.
Building Trust Through Transparency
At the Y&H SDE, we are committed to complete transparency with public and the organisations providing data:
- Regular reporting to your GP and local data providers on all data usage and analysis outputs
- We encourage closer collaboration between health and care data teams, and researchers, allowing them to share techniques and methods to translate high-quality research into practice
- We are committed to ensure that everyone is fully informed about how their data is used. Therefore, we are proactively engaging with public to help us developing the Y&H SDE and improve healthcare research in our region and beyond.
Opt-Out
If you are comfortable with your de-identified healthcare records being used for research studies and initiatives to improve NHS services, you don’t need to take any action.
However, you have the choice to opt-out and prevent your fully de-identified healthcare information from being used in this way if you prefer. This is entirely your decision, and it will not impact the care you receive in any way.
To opt-out, you can use the national or GP data opt-out services provided by NHS: Opt out of sharing your health records – NHS (www.nhs.uk)
If you choose to stop your records being used for research and planning, your data might still be used in some situations. Learn more here: https://www.nhs.uk/your-nhs-data-matters/where-your-choice-does-not-apply/
Access Data We Hold About You
You have the right to request information about yourself through:
To inquire about your data used in the Y&H SDE, please contact us at: YHSDE@bthft.nhs.uk