A recent survey by independent experts Olovus, revealed that most people would be happy to share their health record with via the SDE for research purposes.
Around 850 people were spoken to from across the region as part of the survey, commissioned by the Y&H SDE last year. Nearly three quarters (72%) of those surveyed said they were happy to share their health record for research purposes.
Two thirds (66%) said they would be happy with an approved NHS organisation having access to their identifiable health record and then removing all their identifiable details and just over half (56%) said they would be happy to share their health record via the SDE for non-research purposes.
Grace Mullins, Involvement Lead for the SDE said: “The findings from this comprehensive survey give us a great insight into how we can develop our approach to communicating about the SDE across our region. Whilst there is broad support for data sharing for research purposes, we can see from the responses that public confidence comes only when we reassure them that their information will be used safely, ethically and for clearly defined purposes.”
Download the full survey here.