How your data saves lives

PPIE stands for Patient and Public Involvement and Engagement. As part of our PPIE group we work with patients and public to share knowledge and information, support interpretation of de-identified data, and discuss future collaborations.

We want to ensure full transparency of the Y&H SDE work so everyone is aware of how their data can be used and is confident that there will never be a risk of unauthorised access to your data. By actively involving with communities in the Yorkshire and Humber region, we gain valuable insights that shape the Y&H SDEs priorities, refine its outreach strategies, and improve ways of sharing research findings.

Your Data Saves Lives

The NHS wants to use your healthcare data safely to make care better through secure research. See how trusted researchers can improve healthcare for you, your loved ones, and your community.

Our PPIE group welcomes NHS patients, carers, people who use health and social care services, members of the public and active trial participants – individuals taking part in the study in question.

By joining our activities, you can contribute to the Y&H SDE for better health and wellbeing in our region and beyond.

Easily check and join upcoming Y&H SDE activities here or contact us if you have a question or want to know more about our PPIE group and its activities: YHSDE@bthft.nhs.uk

How Secure Research Works

Protected Data

Healthcare information about you is fully de-identified. We remove personal details to protect your privacy.

Secure Platform

We only allow trusted researchers to access data for projects. They do their research inside secure and safe SDE platform.

Local Control

You decide if your data can be used in research, and you can Opt-Out at any time.

How Your Data Can Help

Helps researchers

They can conduct a high-quality research to make care better.

Improves healthcare

By using research results, doctors can give you better care.

Supports communities

NHS safely uses healthcare data to improve care for the whole community.

Our PPIE group welcomes NHS patients, carers, people who use health and social care services, members of the public and active trial participants – individuals taking part in the study in question.

By joining our activities, you can contribute to the Y&H SDE for better health and wellbeing in our region and beyond.

Easily check and join upcoming Y&H SDE activities here or contact us if you have a question or want to know more about our PPIE group and its activities: YHSDE@bthft.nhs.uk

Download our leaflet for public