Our public events & surveys

As part of our work to hear from people across the Yorkshire & Humber, we worked with local volunteer groups to host workshops in their communities. Have a closer look how we work with public and what we have learnt so far from our communities in our reports.

Stay in touch via our newsletter to learn about upcoming opportunities and help to shape healthcare research in the Yorkshire and Humber region.

Join the Yorkshire & Humber Secure Data Environment Citizens’ Jury

What is a Citizens’ Jury?

Being part of a Citizens’ Jury is your opportunity to share your thoughts, hear different opinions, and work together to make recommendations that really matter.

This Citizens’ Jury has been commissioned and funded by Yorkshire & Humber Secure Data Environment to recruit 25 members of the public to help shape the future of healthcare research. You do not need to be an expert – we want everyday people with everyday perspectives.

How Does a Citizens’ Jury Work?

The Citizens’ Jury is designed to encourage open and meaningful conversations.
Over a few days, you will:

Learn about the Yorkshire and Humber Secure Data Environment (SDE) and why it matters. A secure data environment (SDE) is a platform that stores and provides access to data while keeping it secure and private. SDEs are often used to store health and social care data for research and analysis.
Share your views and work with the group to provide answers to key questions.
Hear from a range of experts, including clinicians, researchers, policy specialists, and people with different opinions.

Why Should You Join?

As a Citizens’ Juror, you will:

Represent your community and make sure all voices are heard
Help shape how the NHS uses data to improve healthcare and research
Get training and learn new skills
Be paid for your time

This opportunity is now closed thank you to everyone who submitted your interest, we will contact you soon.

What we have learnt from our communities so far

In these workshops, we learned that people wanted to know more about how data is accessed and used in research, and what we really mean when we talk about ‘your data’. Everyone in the workshops also wanted us to be honest and clear about the strong security measures we put in place to keep people’s data safe. All the workshops were led by volunteer groups, and they wrote the reports to make sure the conversations were accurate and truly reflected what their communities said.

BTHFT hosted SDE Workshop

Connecting Roma hosted SDE Workshop

OUTLoud hosted SDE Workshop

Bradford4Better hosted SDE Workshop

Bradford General Practitioners SDE Workshop

Your voice matters: Survey on the use of data by the NHS and its partners

NHS South Yorkshire ICB, the University of Sheffield, and NHS Secure Data Environment conducting a survey to understand public perspectives on how their data is used by the NHS and its partner organisations.

This survey is now closed thank you to everyone who submitted your thoughts, we will share the results with you shortly.

There will be more opportunities for us to hear from you, this is your data and we want you to have a say in how it is used and accessed.

We invite you to subscribe to our newsletter of the Yorkshire and Humber Secure Data Environment (Y&H SDE). By joining our community, you’ll first to receive regular updates on:

Ground-breaking research being advanced at pace and at scale through our Secure Data Environment (SDE)
Latest news and insights from our Patient and Public Involvement and Engagement Group
Opportunities for collaboration with us and our partners
Updates on our expanding datasets and platform capabilities
Stories and case studies about how we are making a real difference in the heart of our community

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