How the Y&H SDE works
The Y&H SDE is a federated model that allows the local control of the data by local providers. Equally, with consent from local data providers, the Y&H SDE can carry out all their functions on their behalf.
Once both the researcher and the project are verified and approved, the datasets are securely provided for the relevant research purposes. Before the data can be used, it undergoes de-identification, ensuring that sensitive personal information is replaced with pseudonyms to safeguard individual privacy.
In case researchers have any questions or require clarification regarding provided datasets, the Y&H SDE encourages collaboration between researchers and data providers.
When the research project is completed, the data is removed from the SDE. Researchers are allowed to obtain an anonymous summary of the data analysis conducted within the SDE and include any findings or insights within the metadata of the used datasets.
Check how we keep the NHS data secure in Our Security Promise.
Public involvement and engagement is the core to our approach and has shaped the development of our SDE. We are committed to ensure that everyone is fully informed about how their data is used. Therefore, we are bringing together a network of people to share knowledge and information.
By joining our discussions, you’ll help shape the Y&H SDE to improve healthcare research in our region and beyond. This is your data, and your voice matters.
