People across Yorkshire & Humber have helped shape how the Secure Data Environment works. Their feedback guides the safeguards we put in place, the principles we follow, and the research we support.
On this page, you can find out what people have shared with us, how we’re responding, and what changes have already been made.
At the Y&H SDE, we are committed to complete transparency with public and the organisations providing data:
To learn more about how your NHS data is kept safe, visit Introduction to Health Data Security in the NHS by Understanding Patient Data.
We’re running an ongoing survey to hear directly from the public and keep shaping how health data is used for research and innovation. Your views help us stay connected to what matters most, understand concerns around this complex topic, and make sure we put the right safeguards in place.
The questionnaire will take 10 minutes to complete, just follow the link below. And if you would like this questionnaire in another format, please email yhsde.nhs.uk
Grace Mullins, PPPIE and Communications Lead
Jennie Ellul, Community Engagement Officer
Since graduating with a bachelor’s degree in nutrition and exercise from the University of Salford, she has gained a wide range of knowledge and experience including coaching, teaching, and research. After working as a research assistant for the Born in Bradford Age of Wonder project, Jennie has perused the role of community engagement officer, tapping into her strengths of working with young people and the community.
Chloe Parekh, Community Engagement Co-Ordinator
Chloe is the Community Engagement Co-Ordinator for the Yorkshire & Humber Secure Data Environment and leads on the core Public Advisory Group. She engages with various communities in the Yorkshire & Humber region around research and data. She has a background in Youth Work with young people.
Honey Lucas, Communications and Engagement Project Officer
Honey Lucas is the Communications and Engagement Officer for the Yorkshire & Humber Secure Data Environment. She has been working in communications for many years, specifically in the health, charitable, and education sectors.
Members of the public play a vital role in guiding our work. As part of our governance, they help shape decisions and influence how our programme develops, ensuring everything we do delivers real public benefit.
Their insight keeps us grounded, challenges our thinking, and helps make sure our approach reflects the needs, values, and expectations of the people we serve.
The Young People’s Advisory Group is a new group of young people aged 16–24 from across Yorkshire and Humber. The group’s members will share their experiences – such as using NHS services or accessing health information – and their views on data privacy, and how they feel about their information being used for research. The group will help to make sure young people are properly represented in important conversations.
Their work will support NHS staff and researchers to ensure young people’s voices are heard and reflected in decisions.
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