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Photo of Patient Advisory Group

The recent meeting of Y&H SDE's Patient Advisory Group (PAG) in Leeds focused on the issue of the public's lack of trust in data and data sharing.

Image of a smartwatch displaying health and fitness data. Photo taken by Wiyre Media and shared under Creative Commons Attribution 2.0.

A pioneering project to collect smartphone and wearable device data from up to 10,000 participants across the UK has launched this month in a bid to support future research.

Photograph of the door to 10 Downing Street. Photo taken in 2013 by Sergeant Tom Robinson RLC. Contains public sector information licensed under the Open Government Licence v3.0.

A request to team up with the No 10 Data Science team to explore patient referral processes has been welcomed by Yorkshire and Humber SDE.

Have your say about health data

We are recruiting young people between the ages of 16 and 24 to join our Young People’s Advisory Group and have their say about health and care data and research.

Groups of people attending workshop

Showcasing how the SDE can support clinical trials as Dr Phil Waywell highlights research successes made possible through sharing data via the SDE at innovation event.

Speaker at Royal Academy of Engineering's Practical AI programme and cabinet office event

Speaking an event organised by the Royal Academy of Engineering’s Practical AI programme and the Cabinet Office, John Birkinshaw, Y&H SDE’s delivery lead for West Yorkshire, outlined how data was being used across the region to improve health and drive more clinical research.

SDE Engagement findings report

A recent survey by independent experts Olovus, revealed that most people would be happy to share their health record with via the SDE for research purposes.

Find out how the SDE is breaking new ground in promoting good health and wellbeing through secure, whole system life data. One of our flagship data products, Connected Bradford, contains ‘whole system data’ that is unparalleled in its richness and diversity.

The University of Sheffield’s Data Connect service recently hosted a hybrid event to demonstrate how they are connecting researchers with health, social care and sensitive data and enabling research that improves lives.

This month we mark a significant milestone for the Yorkshire & Humber Secure Data Environment (SDE) programme: one year of working together with our Patient and Public Involvement and Engagement Group.

Read reflections from SDEs Public Group members following the National PPIE SDE Network Event in London.

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